Comparison of patient and physician perspectives in the management of rheumatoid arthritis: results from global physician- and patient-based surveys

RA NarRAtive global advisory panel

Research output: Contribution to journalArticle

3 Citations (Scopus)

Abstract

BACKGROUND: In order to better understand the perspectives of patients and physicians regarding the treatment and management of rheumatoid arthritis (RA), we present and compare results from a patient-based and a physician-based survey developed by the RA NarRAtive advisory panel. METHODS: The RA NarRAtive initiative is directed by a global advisory panel of 39 healthcare providers and patient organization leaders from 17 countries. A survey of patients self-reporting a diagnosis of RA and a physician-based survey, designed by the advisory panel, were fielded online by Harris Poll from September 2014 to April 2016, and from August 2015 to October 2015, respectively. RESULTS: We present findings from 1805 patients whose RA was primarily managed by a rheumatologist, and 1736 physicians managing patients with RA. Results confirmed that RA carries a substantial disease burden; half of the patients surveyed reported stopping participation in certain activities as a result of their disease. While 90% of physicians were satisfied with their communications with their patients regarding RA treatment, 61% of patients felt uncomfortable raising concerns or fears with their physician. Of the patients providing responses, 52% felt that improved dialogue/discussion would optimize their RA management, and 68% of physicians wished that they and their patients talked more about their RA goals and treatment. Overall, 88% of physicians agreed that patients involved in making treatment decisions tend to be more satisfied with their treatment experience. CONCLUSION: The results of these surveys highlight the impact of RA on patients, and a discrepancy between patient and physician views on communication. Further research, focused on improving patient-physician dialogue, shared goal-setting, and treatment planning, is needed.

Original languageEnglish
Number of pages1
JournalHealth and Quality of Life Outcomes
Volume16
Issue number1
DOIs
StatePublished - 9 Nov 2018

Fingerprint

Rheumatoid Arthritis
Physicians
Surveys and Questionnaires
Therapeutics
Communication
Health Personnel
Fear
Decision Making

Keywords

  • Patient perspective
  • Rheumatoid arthritis
  • Treatment

Cite this

@article{28d8537d620b419693230a4aacb67d65,
title = "Comparison of patient and physician perspectives in the management of rheumatoid arthritis: results from global physician- and patient-based surveys",
abstract = "BACKGROUND: In order to better understand the perspectives of patients and physicians regarding the treatment and management of rheumatoid arthritis (RA), we present and compare results from a patient-based and a physician-based survey developed by the RA NarRAtive advisory panel. METHODS: The RA NarRAtive initiative is directed by a global advisory panel of 39 healthcare providers and patient organization leaders from 17 countries. A survey of patients self-reporting a diagnosis of RA and a physician-based survey, designed by the advisory panel, were fielded online by Harris Poll from September 2014 to April 2016, and from August 2015 to October 2015, respectively. RESULTS: We present findings from 1805 patients whose RA was primarily managed by a rheumatologist, and 1736 physicians managing patients with RA. Results confirmed that RA carries a substantial disease burden; half of the patients surveyed reported stopping participation in certain activities as a result of their disease. While 90{\%} of physicians were satisfied with their communications with their patients regarding RA treatment, 61{\%} of patients felt uncomfortable raising concerns or fears with their physician. Of the patients providing responses, 52{\%} felt that improved dialogue/discussion would optimize their RA management, and 68{\%} of physicians wished that they and their patients talked more about their RA goals and treatment. Overall, 88{\%} of physicians agreed that patients involved in making treatment decisions tend to be more satisfied with their treatment experience. CONCLUSION: The results of these surveys highlight the impact of RA on patients, and a discrepancy between patient and physician views on communication. Further research, focused on improving patient-physician dialogue, shared goal-setting, and treatment planning, is needed.",
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author = "{RA NarRAtive global advisory panel} and Allan Gibofsky and James Galloway and Joern Kekow and Cristiano Zerbini and {de la Vega}, Maria and Gavin Lee and Lee, {Eun Young} and Catalin Codreanu and Cheryl Koehn and Kathy Steinberg and Eustratios Bananis and {de Leon}, {Dario Ponce} and Anna Maniccia and Ara Dikranian",
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Comparison of patient and physician perspectives in the management of rheumatoid arthritis : results from global physician- and patient-based surveys. / RA NarRAtive global advisory panel.

In: Health and Quality of Life Outcomes, Vol. 16, No. 1, 09.11.2018.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Comparison of patient and physician perspectives in the management of rheumatoid arthritis

T2 - results from global physician- and patient-based surveys

AU - RA NarRAtive global advisory panel

AU - Gibofsky, Allan

AU - Galloway, James

AU - Kekow, Joern

AU - Zerbini, Cristiano

AU - de la Vega, Maria

AU - Lee, Gavin

AU - Lee, Eun Young

AU - Codreanu, Catalin

AU - Koehn, Cheryl

AU - Steinberg, Kathy

AU - Bananis, Eustratios

AU - de Leon, Dario Ponce

AU - Maniccia, Anna

AU - Dikranian, Ara

PY - 2018/11/9

Y1 - 2018/11/9

N2 - BACKGROUND: In order to better understand the perspectives of patients and physicians regarding the treatment and management of rheumatoid arthritis (RA), we present and compare results from a patient-based and a physician-based survey developed by the RA NarRAtive advisory panel. METHODS: The RA NarRAtive initiative is directed by a global advisory panel of 39 healthcare providers and patient organization leaders from 17 countries. A survey of patients self-reporting a diagnosis of RA and a physician-based survey, designed by the advisory panel, were fielded online by Harris Poll from September 2014 to April 2016, and from August 2015 to October 2015, respectively. RESULTS: We present findings from 1805 patients whose RA was primarily managed by a rheumatologist, and 1736 physicians managing patients with RA. Results confirmed that RA carries a substantial disease burden; half of the patients surveyed reported stopping participation in certain activities as a result of their disease. While 90% of physicians were satisfied with their communications with their patients regarding RA treatment, 61% of patients felt uncomfortable raising concerns or fears with their physician. Of the patients providing responses, 52% felt that improved dialogue/discussion would optimize their RA management, and 68% of physicians wished that they and their patients talked more about their RA goals and treatment. Overall, 88% of physicians agreed that patients involved in making treatment decisions tend to be more satisfied with their treatment experience. CONCLUSION: The results of these surveys highlight the impact of RA on patients, and a discrepancy between patient and physician views on communication. Further research, focused on improving patient-physician dialogue, shared goal-setting, and treatment planning, is needed.

AB - BACKGROUND: In order to better understand the perspectives of patients and physicians regarding the treatment and management of rheumatoid arthritis (RA), we present and compare results from a patient-based and a physician-based survey developed by the RA NarRAtive advisory panel. METHODS: The RA NarRAtive initiative is directed by a global advisory panel of 39 healthcare providers and patient organization leaders from 17 countries. A survey of patients self-reporting a diagnosis of RA and a physician-based survey, designed by the advisory panel, were fielded online by Harris Poll from September 2014 to April 2016, and from August 2015 to October 2015, respectively. RESULTS: We present findings from 1805 patients whose RA was primarily managed by a rheumatologist, and 1736 physicians managing patients with RA. Results confirmed that RA carries a substantial disease burden; half of the patients surveyed reported stopping participation in certain activities as a result of their disease. While 90% of physicians were satisfied with their communications with their patients regarding RA treatment, 61% of patients felt uncomfortable raising concerns or fears with their physician. Of the patients providing responses, 52% felt that improved dialogue/discussion would optimize their RA management, and 68% of physicians wished that they and their patients talked more about their RA goals and treatment. Overall, 88% of physicians agreed that patients involved in making treatment decisions tend to be more satisfied with their treatment experience. CONCLUSION: The results of these surveys highlight the impact of RA on patients, and a discrepancy between patient and physician views on communication. Further research, focused on improving patient-physician dialogue, shared goal-setting, and treatment planning, is needed.

KW - Patient perspective

KW - Rheumatoid arthritis

KW - Treatment

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